Minnesota Family Celebrates Son’s Life-Saving Transplant Journey

A family in Dennison, Minnesota, recently faced a daunting challenge when their unborn son was diagnosed with a rare genetic disorder known as X-linked severe combined immunodeficiency (SCID), often referred to as “bubble boy disease.” This condition severely compromises the immune system, leaving affected individuals vulnerable to infections that most can fend off easily. Thanks to the generosity of a stranger, the Haugen family’s story has taken a significant turn toward hope.

Danielle and Nick Haugen were initially filled with joy when they discovered they were expecting a son during a gender reveal flyover. However, that excitement quickly turned to anxiety. Danielle’s brother had previously succumbed to SCID, and she feared that history would repeat itself. “My brother died from this, and I never really got to meet him,” she reflected.

At six months into her pregnancy, Danielle underwent testing, which confirmed that her unborn son had inherited the same life-threatening condition. The realization brought overwhelming dread. “I’m going to have this baby and he’s going to die … because I just know what my mom and dad knew,” she said.

Advancements in medical care over the past four decades have improved survival rates for SCID, particularly through newborn screenings and bone marrow transplants. Understanding this, the Haugens began preparing for their son’s future. They undertook significant efforts to create a safe environment for him, which included cleaning their farm and removing animals that could pose health risks. “Basically we just went into high gear and started cleaning the farm up even more, and got rid of all the chickens, got rid of all the pigs,” Nick explained.

The community rallied around the family, organizing fundraisers to support their financial needs during an anticipated lengthy absence from work. Local businesses contributed vital services, including deep cleaning from ServiceMaster and the installation of UV lights in their home ductwork by HS Ultra. A second living unit was constructed for a friend nearby, ensuring the Haugens had a place to stay close to the hospital during their son’s treatment.

On December 30, 2024, James Jacob “JJ” Haugen was born. Shortly after, in early March, he underwent a critical bone marrow transplant. The family returned to their farm in late June, rejuvenated by the life-saving procedure. A stranger’s donation of bone marrow has provided JJ with a second chance at life, and the Haugens are determined to spread awareness about the importance of donor registration.

“Without our donor, we would not be standing here with our son alive,” Danielle stated. “I thank our donor, whoever she is, and I hope to meet her one day for saving JJ’s life. Thank you.” The family plans to advocate for others to register with the National Marrow Donor Program (NMDP) to potentially save more lives.

As they look ahead, the Haugens are eager for the day when JJ can play outside with his older sister, Brindley. Their experiences have shifted their priorities. “You’re only young once,” Nick highlighted. “As much time as we can spend with him and do more traveling with him, and more fishing and hunting instead of work.”

The Haugen family’s journey is a poignant reminder of the challenges faced by those with severe medical conditions and the profound impact of community support and selfless acts of kindness.